Part 1 covers topics that should be considered when planning a project with data sharing in mind. These topics include NIDILRR requirements for data sharing, a definition of data, the importance of sharing data, components of data management plans, and language to use when crafting Informed Consent documents for an Institutional Review Board (IRB). This video will take approximately 19 minutes.
Continue to Part 2: Preparing Data and Documentation
Full PowerPoint presentation (all parts- 9Mb)
Additional Materials:
- ACL Public Access Plan
- Guidelines for Effective Data Management Plans
- Data Confidentiality
- HIPAA Privacy Rule (with direct identifiers list)
- Institutional Review Boards (IRBs)
- Qualitative Data Repository (informed consent guidance)
- Recommended Informed Consent Language for Data Sharing
- ADDEP Home (Archive of Data on Disability to Enable Policy and research)
- ADDEP Deposit Data
- ICPSR Home
- ICPSR Deposit Data
- Resources for NIDILRR Grantees
- ICPSR Standard Terms for Use of Data by Secondary Users
- ICPSR contact information: help@icpsr.umich.edu or 734-647-2200.
If you encounter any difficulties with this website, please contact Jessica Chaiken at NARIC: jchaiken@heitechservices.com or 800/346-2742, x1114.