Part 2: Preparing Data and Documentation
Part 2 covers topics involved with preparing the data and documentation to be shared. These topics include formats of data that can be shared, how to structure your data files, what types of documentation should accompany your data, naming conventions for your variables, and how to handle restricted or sensitive data. This video will take approximately 29 minutes.
Return to Part 1: Planning for Data Sharing
Continue to Part 3: Sharing Data
Full PowerPoint Presentation (all parts- 9Mb)
Additional Materials:
- ACL Public Access Plan
- Guidelines for Effective Data Management Plans
- Data Confidentiality
- HIPAA Privacy Rule (with direct identifiers list)
- Institutional Review Boards (IRBs)
- Qualitative Data Repository (informed consent guidance)
- Recommended Informed Consent Language for Data Sharing
- ADDEP Home (Archive of Data on Disability to Enable Policy and research)
- ADDEP Deposit Data
- ICPSR Home
- ICPSR Deposit Data
- Resources for NIDILRR Grantees
- ICPSR Standard Terms for Use of Data by Secondary Users
- ICPSR contact information: help@icpsr.umich.edu or 734-647-2200.
If you encounter any difficulties with this website, please contact Jessica Chaiken at NARIC: jchaiken@heitechservices.com or 800/346-2742, x1114.